I think my “favorite” symptom is one called “brain fog.” Seriously. Brain fog.
My original search for answers was based on what I considered my primary symptom: headaches.
I thought that the confusion and inability to focus was just a side effect of having a headache that lasted for months without a break. Then in discussing Superior Canal Dehiscence Syndrom (SCDS) with my doctor I found out that it is considered a symptom all on its own.
I mentioned this to a coworker and he said something similar happens to new parents. He says the exact same thing every time I tell him that brain fog is a symptom of SCDS. He’s a parent and good at repetition.
So yeah, I can’t think as well as I used to. Really, physically can’t think as well. I’m late more often, forget that I have to be places or call people or do things. I forget how to do things. People’s names when looking straight at them. Words. Putting thoughts together is an effort.
It became enough of an issue when I almost missed one of my doctor appointments that I sat Isaiah, my husband, down and had a talk. Now my husband comes from a very relaxed family and I love him for it. Our relationship has always been me organizing and him keeping me from getting stressed over organizing. We are a good partnership. He took on all my chores and takes wonderful care of me without hovering.
Me, “Isaiah, I’m not doing well. We almost missed that doctor’s appointment and I can’t be responsible for remembering them. I need help.”
Isaiah, “Ok, we’ll get you an iPhone.”
Note how adeptly he dodged being responsible for me. Good man!
*It should be noted that when I “quote” I am never really quoting, it’s always a paraphrase based on how I remember it.
Anyway, I have an iPhone now that I lean on for calendaring, note taking, reminder lists, whatnot. I’ve also starting taking a ridiculous number of pictures of the cats. Brain fog. Yeah.