Thank you to work for continuing to be considerate and understanding. Thank you to Allen B for joining the Words with Friends friends. I cannot say how much all you who distract me with Words with Friends are helping. Thank you to Dave F for meeting up to talk about SCDS as someone else who has had the issue and had surgery to take care of it. Also thank you to Dave F for “Walker Texas Ranger” the best walker a girl could have to help with post surgery vertigo. Thank you to my husband for being super supportive always.
My mother just called. I was telling her about the pictures I took while Isaiah and I were out of town and how I was uploading them to Flickr. Then I said, “I don’t know where my phone is but I’ll upload more later.”
After I said goodbye I went to hang up and said to myself, “Oh, there’s my phone.”
Then I started laughing and called Mom back to tell her I had found my phone, I had been talking on it.
She laughed too because she hadn’t thought of that solution either.
Thank you as always to my Words with Friends friends. Thank you to Schwern for the Wonder Woman pajamas and the mysterious benefactor who sent the super comfy sitting up in bed pillow. Thank you to John & Melissa for getting me the lambic oh so long ago that I am now drinking because if I’m going to be this dizzy then I’m going to be drunk. Thank you to my husband for being out while I make poor decisions because I am still free to make poor decisions. Thank you to my mom & stepdad for the very pleasant visit while we were out and about. Thank you to Apio for cat sitting. Thank you again to Jeff for the vertigo cane, I ended up using it some today after I threw up because having my hand on a stable object helps me with which way is up and reduces vertigo. Thank you to V for thinking of me. Thank you to the people who make movies that end up on Netflix. Thank you to the TV show Midsomer Murders, especially whenever anyone says murder as “meurrrder” in that delightful British way.
I spend a lot of time in bed these days but it is nothing compared to the time I will be spending in bed the three weeks after brain surgery. I am therefore brainstorming how to make my bedroom most liveable. Potentially related to my need to have control over something (anything) in an otherwise powerless situation.
My resources include a bedside table, seven foot bookshelf, small craft table, comfy chair and two dressers.
We already have a TV and a Playstation set up here in the bedroom. I will probably adjust the location for more comfortable viewing. I do plan on watching movies but what movies to keep nearest to me? Up and other Pixar movies seem like a good idea. What others? Should I add a few video games to the mix? I can’t play a lot now because I’m dizzy and the surgery is supposed to have some dizzy side effects but what about a week or two after? Should I be optimistic? Or at least be sure I have the farmer video game where I can raise chickens and milk cows?
I also like the idea of keeping books within reach. What books?
Craft projects, what craft projects?
I am already bored with being sick. What can I do to make being sicker more bearable?
It’s hard to focus. Today is a bad head day. I actually threw up. I never throw up. Asophougus of steel. All I can do is lay here and quasi-think. Need more distractions.
My husband and I had planned a four day weekend for his birthday. We made it through three and are now home. Even going slow I can’t go as far as I used to.
It leaves me feeling very very sad and petulant and hating my head. I love being active and I hate that the more active I am the more my head hurts, the more I feel like throwing up, the more my brain seems to spin behind my eyes.
Sure, I’ll feel better after laying still for a day or so. It annoys me that I wasn’t even a quarter as active as I wanted to be and I still have to pay with so much down time. It annoys me that I have to stand at the view point and look up the trail not run up the trail.
The list of things I will do when my head is better is getting longer. I hope this surgery accomplishes as much as I hope it will. I have to believe it will. It will.
Thank you to Kyle for lunch and Pope for watching Gamera with me tonight.
A special thank you out to my Mom who was very soothing today though I don’t remember how, just that I felt better after talking to her.
I got a call from the doctor’s office. The scheduled surgery is officially approved by my health insurance. I find I don’t have a lot else to say.
Nausea is not listed as a direct symptom of SCDS. It’s a sub-symptom listed under Tullio phenomenon. Basically everyday life makes me motion sick. Like right now my monitors are shaking just a tiny bit and the sound of my typing is like being on a boat during a storm.
Thank you as always to my Words with Friends friends.
Also thank you to Daniel at work for buying me a gyro for lunch. Sometimes it’s the littlest things that make life nicer.
When I first started getting headaches I called them migraines. I had sensitivity to light and sound and a headache could wipe me out for days. It seemed like a migraine sort of experience.
Thinking I had migraines I went on an elimination diet looking for my triggers. I drank coffee when I hadn’t before. Caffeine can stop migraines. Everything I tried was based on this idea of migraines. Nothing helped and I couldn’t figure out what made my headaches worse. There was no managing my symptoms.
Knowing I have a problem with my inner ear I can now manage my symptoms better. I know what makes my headaches worse and what can help.
What helps is laying down in a quiet area with as little going on as possible in all directions.
What makes my symptoms worse is moving around (especially any activity that involves pivoting or my head changing level) as well as noisy situations or anything that involves trying to pay attention to more than one sound at a time. Oh, and running to catch the bus or lifting anything heavy or quickly. Or any sudden change of direction or movement.
That means that if I live a slow sedentary life with no chores, no cooking, no walks, no crowds, no lunches of more than two friends at a time, etc, then my evening headache is bearable and I can push out the unbearable two day headache to nearly every two weeks instead of once a week. This is how I will survive until the doctor fixes my superior canal dehiscence in December. And why I’m going hiking a lot in the spring.